Roundup, 21 March 2013 – Personal Data at SXSW, JAMA, and Pandora

It’s been an interesting week in personal data. Here’s the scoop.

Mark your calendar:

More events on our

SXSW is just starting to name personal data concerns

PDEC’s Cathleen Ash and Joseph Boyle followed the personal data conversations from SXSW Interactive. See our blog’s sxsw tag for the whole series.

  • In SXSW starts it off right!, Cat reported on the “Who owns the data?” panel. The big takeaway: for now, data custody has all the power of ownership with little of the responsibility.
  • A session on cloud identity raised more questions than answers about cloud ID’s fractal and fragmented nature.
  • Another day in data heaven asks if children should have similar data rights to adults.
  • Big Data, Better Democracy, the Rise of Analytics brought in IT leaders from the Obama and Romney 2012 presidential campaigns, comparing notes on how data science drives voter and funding behavior.
  • Cat took in the coercion of take-it-or-leave-it terms of service, seeking new options with more personal power.
  • Joseph’s field notes from the What’s In A Name? session cover a thorough history of anonymity’s evolution, back from 17th century Europe, through revolutions and civil wars, to more recent times when ideas like collective nyms, stable vs. disposable pseudonyms, doxing, and a growing cold war between anonymization and deanonymization.

A big thanks to Personal‘s Josh Galper for our south-by festival tickets. Made our week.

In our Evernotes… 

JAMAOur friends at the Health Record Banking Alliance argue personal data stores are better than health information exchanges for the whole healthcare system. (fyi: HIEs leave patients without control of their clinical data). Smack dab in the Journal of the American Medical Association!

Would you give up your personal data for development? Personal data as a charitable contribution or “data philanthropy.”

Liability Part 1. Google to pay $7 million for collecting personal health, other data

If the Internet is a surveillance state, as Bruce Schneier says on, would you mind so much if you had access and control over their observations about you?

Let My Data Go, Pandora!  

RIM’s new enterprise software carves out a part of your personal mobile for your workplace apps, web, and data. Sounds like the enterprise counterpart to personal clouds.


Stop The Cyborgs organizes resistance to Google Glass ruining what little public privacy remains by banning personal surveillance systems in bars and other spaces. Get your Banned Here signs for your favorite grocery store, pub, or dental waiting room.

Seen the AngelList Personal Data Startups category? 70 startups in that market. 51 under Quantified Self.

TNW’s Dana Oshiro interviewed Doc Searls about the intention economy and ProjectVRM. “Searls: We need mechanisms where customers can signal intent across multiple vendors without being trapped inside any one vendor’s containment system, and without having separately siloed relationships with each of them.”

Image: Henrik Molte via Vimeo.

Care to caption Doc’s portrait?

Until next time.

Phil Wolff,

About Phil Wolff

Phil Wolff is strategy director of PDEC, the Personal Data Ecosystem Consortium, a Small Data NGO. Wolff is a director of the DataPortability Project and co-author of the project's model Portability Policy. He's had management, technology, and marketing roles at Adecco SA, LSI Logic, Bechtel National, Wang Laboratories, Compaq Computer, the City of Long Beach, the State of California, and the U.S. Navy Supply Systems Command. On LinkedIn, ORCID 0000-0002-7815-4750, Quora top 250 of 2012. He holds the PDQ Bach Inauthentic Identity Fellowship at the University of Southern North Dakota at Hoople. Phil lives in Adams Point, Oakland, California.